Patient/Proxy-Defined Core Outcomes

Best Care of the Dying Person during the Last Days of Life: A Qualitative Study about Patient-Defined and Proxy-Defined Core Outcomes

In the proposed project, a qualitative study will be undertaken to understand and identify how patients and proxies define their expectations of care for the last days of life across domains of importance to them and their families, and whether these are different to those identified for other stages of the illness trajectory. This unexplored aspect of patient experience is critical to provide better care in the last days of life.  Data from in-depth interviews and from focus groups with patients and bereaved relatives will be analysed via Thematic Analysis.