Development of Core Outcome Set

Development of an International Core Outcome Set (COS) for Best Care for the Dying Patient

This study involves four stages for the development of a COS. Initially, a systematic review of the literature will identify the outcomes measured in existing peer reviewed and grey literature. A second stage will determine patient- and proxy-defined outcomes of care at the end of life through quantitative and qualitative methodologies. This step will be duplicated in several countries. Thirdly, from a list of salient outcomes identified through stages 1 and 2, stakeholders will be asked to rank the importance of the preselected outcomes in order to prioritise outcomes through a Delphi process. Lastly, a face-to-face consensus meeting will take place in order to define, propose and endorse the core outcome set.

Project Partners
Contributors ordered alphabetically by country:

- Vilma Tripodoro, María Laura Daud & Gustavo De Simone / Pallium Latinoamérica, Argentina
- Kerstin Kremeike & Raymond Voltz / Zentrum für Palliativmedizin Universitätsklinikum Köln (AöR), Germany
- S. Iris Halfdanardottir & Valgerdur Sigurdardottir / Palliative Care Unit, Reykjavik, Iceland
- Jeremy Johnson / Karunashraya, Bangalore, India
- Agnes van der Heide & Natasja Raijmakers / Erasmus MC, Rotterdam, Netherlands
- Jean Clark & Simon Allan / Arohanui Hospice, Palmerston North, New Zealand
- Dagny Faksvåg Haugen & Katrin Sigurdardottir / University of Bergen, Norway
- Haroon Hafeez & Kashif Sajjad / Shaukat Khanum Memorial cancer Hospital & Research centre, Pakistan
- Catarina Simões / Palliative Care Team H. Luz Arrábida, Portugal
- Carl Johan Fürst, Birgit Rasmussen & Ulrika Olsson-Möller / Palliativt Utvecklingscentrum, Sweden
- Steffen Eychmüller & Sofia Zambrano / Palliativzentrum Inselspital, Bern, Switzerland
- John Ellershaw / Marie Curie Palliative Care Institute Liverpool, UK

Type of Research Project
Non-clinical research

Project Status
In progress

Project Start / End Dates
January 2017 - February 2019

Responsible Person
Sofía C Zambrano, PhD

Principal investigator at the Inselspital
Prof. Dr. med Steffen Eychmüller